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This week's newest edition to "Under the Microscope" is a presentation on Neuroblastoma Bone (and Bone Marrow) Metastases by Dr. Heidi Russell. On March 18,2008, Dr. Russell spent a little over an hour speaking with families about neuroblastoma bone and bone marrow metastases during the CNCF's online educational series. Dr. Russell is known as a leader among the neuroblastoma community in this area of research and is the lead investigator for the NANT consortium's phase I clinical trial, "N2004-01: A Phase I Study of Zoledronic Acid (Zometa) with Cyclophosphamide in Children with Recurrent or Refractory Neuroblastoma and Cortical Bone Involvement." The entire presentation and discussion with Dr. Russell can be found here.
 Did you miss the last CNCF Neuroblastoma Conference? Well, not to worry, now you can watch all of the videos from the conference in the comfort of your own home. The CNCF's 2007 Neuroblastoma Conference videos are now online! You can find them here on this website. They are also available through Google video so you can download them to your iPod. We hope you find all of the information that you are looking for. Please take a moment to leave comments or feedback on each video you watch so that we can make them even better next year.
 The CNCF now has its very own home on YouTube. YouTube has selected the Children's Neuroblastoma Cancer Foundation as one of the recipients of its Not for Profit channels. Now you can keep up to date through video as well. Check back often as new videos are being added every week. In the very near future all of our conference videos will be there as well. Please stop by and comment on all of the new videos and take a moment to share your own. The CNCF's YouTube channel can be found at http://www.youtube.com/cncf2007.
THe CNCF's YouTube channel can be found at http://www.youtube.com/cncf2007
"Under the Microscope" is a new research blog created just for families of children with neuroblastoma. As many know it can be very difficult to find information and more often it is even harder to make sense of the research. Mark Dungan tackles tough topics submitted by readers. He meets with neuroblastoma researchers and combs published articles to find the best and most up to date answers to your questions. His articles are provided without bias and in both print and video. His first article, "Could we be hearing less about hearing loss?" can be found here. The video summary is available in the CNCF's YouTube Channel found below.
THe CNCF's YouTube channel can be found at http://www.youtube.com/cncf2007
The CNCF's support communities provide opportunities for patients and family members, clinicians, researchers, and other medical experts to share information concerning symptoms, diagnosis, treatment, and care and to provide emotional support for parents and siblings
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Sign up to participate in the most comprehensive forums available in the world of neuroblastoma. Talk to other families, ask questions and share information.
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Use the CNCF Blogs list to find blogs about Neuroblastoma written by parents, medical professionals, and specialists.
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Attend a live or on-demand webcast from the convenience of your home, hospital room, or office. Talk and ask questions of the leading specialists and oncologists in the field of neuroblastoma.
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The NB Awareness Bracelet is now available. Click here for further details.
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July 17-20, 2008
6th Annual Neuroblastoma Conference for Families and Caregivers
Click here to find out more.
April 20, 2008
"Bracelets for Elizabeth" raises $20,000 for CNCF
http://www.nbhope.org/BraceletsforElizabeth_140.aspx
April 20, 2008
TOURNAMENT RAISES OVER $80,000!!!
4th Annual Fore Noah Golf Tournament
in Longbow Golf Club in Mesa, Arizona.
http://www.noahnelson.org
April 27, 2008
"Run for a Reason" Fundraiser in Cumming, GA
In honor of Hannah Shaver
May 3, 2008
TOURNAMENT RAISES OVER $34,000!!!
2nd Annual Amazing Grace Golf Tournament in Houston, TX. Read more here.
May 4, 2008
www.allieandfriends.org
"The Night Before the Allie"
Guest Speaker: Coach Tony Dungy of the Indianapolis Colts
May 5, 2008
GOLF OUTING RAISES OVER $165,000!!!
www.allieandfriends.org
"Ryan Diem's Allie & Friends Golf Classic"
May 18, 2008
Cellcom Green Bay Marathon
In honor of Kate Jacobs
http://www.firstgiving.com/katejacobs
http://www.plamerican.com/news/general-news/kates-story-baby-s-battle-cancer-5481
May 27, 2008
2nd Annual Lunch for Life/Purple Cow Event in Dallas, Fort Worth, and Plano, TX
Amy Kieliszewski Wins the GOLD at the 1st Annual Moonbeam Children's Book Awards
Read more here.
www.ashleighmariebooks.com
"Beating Childhood Cancer is our Game"
TeamConnor
Visit their site.
Fairies Tea Party
www.fairiesteaparty.com
April 27, 2008
Pampered Chef Fundraiser for CNCF
This event is hosted by Glori Hale
March 18, 2008
12:00 PM - 1:00 PM CDT
Online Seminar for Families
The CNCF has launched its online educational series. Join Dr. Heidi Russell as she discusses neuroblastoma, bone metastases, and current treatments. Please click here to register online.
Jan 28, 2008 - Feb 1, 2008
Charity Week
Fr. Gabriel Richard High School in Ann Arbor, MI
February 2, 2008
Dance for Life
St. Patrick's Church in Edina, Minnesota
http://www.firstgiving.com/danceforlife
December, 2007
USA Radio Network's nationally syndicated morning radio show, DayBreak USA dedicates an entire day to neuroblastoma, the CNCF, and Lunch for Life. Download the MP3s below
Email them at daybreakusa@usaradio.com to thank them for bringing neuroblastoma to the forefront.
October 31, 2007
Halloween4Kids Coin Drive Fundraiser
www.coins4kids.org
October 22, 2007
Sarel River Charity Jazz Concert
Flushing Town Hall
Flushing, NY
www.sarelriver.com
October 11, 2007
Art of Giving
RAISES OVER $3,000
110 Greene Street
New York City
6:30-8:30 pm
A group of 7 very talented, emerging photographers have generously donated their photographs for purchase.
http://tobypannone.blogspot.com
September 22, 2007
Rattlin' Hum
.... the Best in Classic Rock and Roll
White Plains, NY
www.rattlinhum.net
RAISES OVER $3,000
In honor of Jenna Mussolini
July 28, 2007
"Hope for Beau"
First Pentecostal Holiness Church Annex
204 Brinkley Rd.
Greenville, NC
Contact: kellylcannon@yahoo.com
www.beaustanley.com
Read more here.
June 16, 2007
Pedaling with a Purpose
Eric Cook's 100 mile bike race
www.active.com/donate/pwap2007
May 14, 2007
Ryan Diem's Allie & Friends Golf Classic
RAISES OVER $145,000!!!
Boulder Ridge Country Club
Lake in the Hills, IL
www.allieandfriends.org
April 29, 2007
Fore Noah Golf Tournament - Long Bow Golf Course
Mesa, AZ
RAISES OVER $75,000!!!
www.noahnelson.org
April 20, 2008
CNCF and CureSearch partner to deliver "lunch" to COG investigators at Spring meeting in Dallas and to bring awareness to the Conquer Childhood Cancer Act of 2007. For more information about the Act click here.
April 18, 2007
Lunch for Life Purple Cow events in Dallas/Fort Worth www.LunchforLife.org
March 31, 2007
Release of Ashleigh's Fairies - Book Signing
www.ashleighmariebooks.com
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